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Autism

This topic covers about Autism, Diagnosis and Autism in india etc...

Autism Spectrum Disorder (ASD) the result of a Neurological Condition, also referred to as pervasive developmental disorder is characterized by deficits in social interaction, verbal and nonverbal communication, engagement in repetitive behaviours or interests, rigidity in thought and behaviour.

Autism & Learning

Early intervention in ASD helps to minimize delays and improves a child’s potential in reaching normal developmental milestones. Researcher also shows that individualized, structured teaching fostered the children’s progress and helped in improving his/her communication skills, daily living abilities, motor coordination, social skills, and adaptive behaviours.

Educational mechanisms for the Autistic children use methodologies like TEACCH (Treatment and education of autistic and related communication handicapped children), ABA (Applied Behaviour Analysis), Sensory Integration Therapy etc. These methods emphasize on working in collaboration with parents and families, to create programme design around individual strengths, skills, interests and needs of the child; enabling the individual to be as independent as possible.

ICT based solutions can ideally aid in implementing these established methods of teaching and help as supporting aids in achieving the desirable personalized teaching strategies for the Autistic.

How is Autism Diagnosed?

Classic forms of autism can usually be diagnosed before the age of three, while milder or atypical cases may take much longer to be identified. Autism is clinically defined by a set of characteristics that manifest in different ways and are expressed to varying degrees of severity, thereby more commonly referred to as the ‘autism spectrum’. The ‘spectrum’ of diagnoses currently includes autistic disorder (also referred to as ‘classic’ autism), Asperger syndrome and pervasive developmental disorder not otherwise specified (PDD-NOS). Forthcoming changes to the widely-used diagnostic system, the Diagnostics and Statistics Manual of Mental Disorders (DSM-5), will replace these subtypes with a single diagnosis of autism spectrum disorder, differentiating between individuals according to the severity of their symptoms.

Is your child 'at risk' for Autism?

Autism is a neuro developmental disability that impairs social and communication development, pretend and imagination. It is not mental illness. Nor caused by trauma. The symptoms can be greatly reduced by early detection and intervention. Autism occurs 4 times more in boys than girls, 1/150 children will be diagnosed as having autism.  Autism is not a disease, it is a condition.

At 18 months..

  • Does language development seem slow?
  • Has lost words once mastered?
  • Did you or others suspect hearing loss?
  • Has an unusually long attention span?
  • Seems to be in her/ his own world?
  • Is hyperactive?
  • Walks or spins on toes?
  • Flaps hands when excited?
  • Unable to follow simple command like "come here"
  • Ignores you when name is called?
  • Plays by self rather than with children of same age?
  • Leads you by hand rather than use finger pointing to request some object?
  • Unable to bring an object to show you?
  • Avoids eye contact or have difficulty sustaining eye gaze?

If the answer is yes to most of the questions, your child may be 'at risk' for autism.

Autism Signs

Autism refers to a group of developmental problems known as autism spectrum disorders (ASD). It appears in early childhood usually before the age of 3. Generally, autistic children face problems with social interaction, language and behaviour; the symptoms and severity vary.  In severe cases, there is a complete inability to communicate or interact with others. Most children with autism are slow in acquiring new knowledge or skills while others have normal to high intelligence; they learn quickly. Yet they have trouble communicating and adjusting in social situations. Some autistic children have exceptional skills in areas such as art, mathematics or music.

Lack of timely development of language, regression in communication etc., are signs that help your doctor to evaluate autism. Certain developmental tests including speech, language and psychological issues also help confirm autism.

Screening tests

There are no biological markers for autism. In the US, the diagnosis is clinical, based on criteria from the Diagnostic and Statistical Manual of Mental Disorders (DSM IV) by the American Psychiatric Association.

The Childhood Autism Rating Scale (CARS) test combines parent reports and direct observation by the professional. It helps identify and diagnose autism in ages 3 to 22 years and also estimates the severity of the disorder. The entire scale can be completed in 20-30 minutes. The CARS was originally correlated to the DSM III and then to the DSM III-R. The test provides standard scores and percentiles as well as a table for determining the likelihood that a child is autistic and the severity of the disorder.

Indian Scale for Assessment of Autism (ISAA), a new screening tool developed by National Institute for Mentally Handicapped (NIMH), Government of India, ministry of social justice and empowerment is helping experts diagnose autism in the early stages. According to Dr YP Mukesh, assistant professor of psychiatry at the National Institute of Mental Health and Neuro Sciences (NIMHANS), Bangalore, ISAA will help a great deal in identification and rating the severity of autism.

Autism and Co-occurring Conditions

People diagnosed with ‘classic’ autism often also have other co-occurring conditions, such as learning difficulties (intellectual disability), impaired language development, and epilepsy/seizures, which affect their quality of life. These ‘co-morbid’ conditions may not be manifest (or not to the same debilitating degrees) in people with Asperger syndrome, or with classic autism without intellectual disability. However, psychiatric conditions such as depression, bipolar and affective disorders, commonly occur in all autism subtypes, including Asperger syndrome.

Underlying Aetiology

Autism spectrum conditions are strongly influenced by genetic factors, but the underlying genetic mechanisms are complex and not yet fully understood. There is no single gene for autism; instead multiple genes are likely to be involved and these vulnerability genes may vary between families and individuals. Interactions between genes and interplay between genetic and environmental influences are also likely to play a role in the development of the condition.

Autism in India

These are all very intriguing and important questions. Some of these we can answer from our experience working with hundreds of families-- for example, we have a good idea of what the experience of autism is like for Indian families. However, without empirical research, there are many questions about autism in India (and other places in the world) that remain unanswered.

One of the major difficulties faced by parents of children with autism in India is obtaining an accurate diagnosis. A parent may take their child to a paediatrician only to be reassured that their child is just "slow." Unsatisfied, they may visit a psychologist, to be told their child is "mentally subnormal." Convinced that their child does not fit the typical picture of mental retardation, they may visit a psychiatrist, to be told that their child has attention deficit disorder, and must be put on medication to control hyperactivity. After months of sedation and unsatisfactory progress, they may again begin a cycle of searching for the correct name for their child’s problem. Fortunately, the process of obtaining a diagnosis of autism in India is improving in the major cities, as more paediatricians become aware of the condition. Still, some doctors may feel that nothing can be gained by a diagnosis of autism if the services are not there; yet, as more children are diagnosed as autistic and more awareness of the disorder spreads, there will be a demand for services. Schools will be forced to educate themselves if they find that more of the population they serve is autistic.

Admittedly, there are not enough services to meet the needs of mentally retarded children and adults in India, let alone those who are autistic. Let this then be an impetus to create more, and ensure that the special needs of autistic children are not ignored. There is also an urgent need to begin planning homes and centres for these children when they become adults: people with autism have a normal life span and many will require supervision after their parents’ death. Currently, the needs of autistic children in India are not being met in either the regular or special education systems. With an understanding teacher or possibly an aide, a more able autistic child can function very well in a regular school, and learn valuable social skills from his peers. However, even children with very high I.Q.’s are often not permitted in regular classes. Also, the rigidity and pressure of schools in India can make it difficult for an autistic child to cope without special allowances. Some middle and lower functioning children, who form the majority of autistic children, may attend special schools, but these schools almost always lack an understanding of effective methods of handling the challenging behaviours of autistic children. As one psychologist noted, "The kids just get ‘dumped’ or ignored at the special schools." Children with autism are frequently refused admission in these special schools because officials protest they are not equipped to handle autistic children, who are sometimes more challenging than children with mental retardation alone. We believe that special schools should invest in learning these techniques, rather than turning parents away!

Primarily as a result of intense work by AFA with the Ministry of Health in the mid-1990's, the Government of India now recognizes autism as a disability. This development is relatively recent: formerly, schools catering solely to autistic persons were not able to receive funding from the government. Persons with autism were also not eligible for concessions and benefits offered by the government unless they were diagnosed as mentally retarded, yet many persons with autism are not mentally retarded. Through the commitment of a community of parents, siblings, other relatives, and autistic people themselves, people with autism and their families now have a voice in the disability legislation and movement in India. While we are pleased that autism now receives recognition, there are still many issues to be negotiated, legal and otherwise. Parents should continue to educate themselves about the Persons with Disabilities (Equal Opportunities, Protection of Rights and Full Participation) Act, 1995, to be aware of what are their rights and benefits are as caregivers of autistic children.

Source: e-Saadhya - Adaptable and Accessible e-Learning, C-DAC

Related Resources

  1. FAQs on Autism Spectrum Disorders
  2. Reference websites for Autism related information
  3. Autism Centers India
2.99479166667
shobha rani Mar 13, 2016 02:41 PM

I notice ISAA has items (16 to 21) which assumes the child is verbal. How can a non verbal child be scored on these items?

P. Kisku Dec 01, 2015 05:34 PM

Sir/Mad'm, Could you plz post the 'Role & Responsibilities ' of the Parents of Autistic Child?

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